Thursday 24 October 2013

Challenges...

I don't want people to think that I have been neglecting my blog and Facebook page. A lot of things have been happening, from good to bad, exciting to upsetting news and so on. I have not posted anything for the past month, that does not mean I have been ignoring you all. Thank you for all your warm messages and worrying about me. I'm sorry if  I have made you worried in any way.

I was really excited and getting ready for university, (a new chapter in life...) which has its own challenges and hurdles in the way. about 3 weeks ago I was admitted into hospital for a week and I fought hard to get out in time for university. My excitement was short lived, unfortunately. I had a nurse come in to train me on a new pump for my feeds (free go pump) which is well lighter than the clear star companion pump. Once the training had finished my tube had been hurting for a very longtime and it still does. she wanted to check my jejunostomy site. Now the problem here is that i don't have any stitches on them I have it taped with me-fix tape, what I do when I'm cleaning the site is use an adhesive remover spray which removes the stickiness and comes of extremely easy with out any problem. This is what I told the nurse to use, but she said no! she wouldn't listen due to that her glove got stuck to the tube when she moved her hand the TUBE GOT PULLED OUT!!! (OUCH!!!!) I SCREAMED IN PAIN! it felt like my whole insides were being pulled out and made me vomit uncontrollably and was in severe pain! She pushed the tube back in (if only she had listened to me, then I wouldn't have had to spent a week in hospital!) well I won't dwell on that too much, but it was one of the painful moments in my life of everyday painful moments that I live with as best as I can.

Well I got myself out in time for university and I'M SO GLAD I did!
My feed were started from 5mls/hour and increased when I could tolerate them. Gladly my tube was in the right position and for that whole week I had to stop my medicine which almost killed to the point where I was vomiting nothing but bile out. I was retching uncontrollably with a shotgun of nausea! I came out on a saturday and increased my feeds at home a an when I could tolerate them. It took some time but I got there.

University. Uni was starting on Monday and I was beyond excited and was hugely proud of my self. Neither in those 2 years of SixthForm did I believe that I would be able to step into a new chapter in my life. And I DID IT! I can't express the feeling I had on the first day of Uni. It felt like that there was hope, if I came along this far then I can still go on, even though everyday is a massive hurdle that I jump with pain and try to overcome it.

I'm into my 3rd week of Uni and its amazing! The people I've met and the whole vibe, its wonderful. The work is a load but I'm trying hard. There were some people who I won't mention didn't believe that  I would come this far! well they are putting their head down in shame because I proved them wrong! The course is challenging but I like challenges, and I've had a fare share of them (LOL).

I will try and update more regularly. Thank you for your ongoing support.

Monday 17 June 2013

I did it!


I have finally finished my A-Level Exams!!!

It was a tough year as I had been hospitalised on many occasions which led to me missing a lot of school! But i fought on with a smile as best as I could. There were times where I though this day will never come! But it has finally come and I am proud that I managed to so far. Now the waiting time begins!
I hope and pray that I get the results my universities want and start a new chapter in my life. Gastroparesis I will not let you win! I will carry on fighting for as long as I can and LIVE my life to the fullest with a smile on my face!
A massive thank you to you all for supporting me along the way without you this would have not been possible! and I will fight on for you all.
Watch this space as now that I'm free there so much more to come!

Hafsa

"A Smile Cures Anything!"

please hit Like on:
https://www.facebook.com/smilingwithgastroparesis

Thursday 7 February 2013

Hey everyone,

Hope your having a good tummy day x

I've had some terrible days lately so thats why I have been so quite; but since this blog is about "smiling with gastroparesis" and I'm glad to say I am smiling because I have tried my best not miss any days of college as this year is very important. Yes I find it extremely hard to wake up in the morning but I try and end up going to college. (All due to my wonderful parents who have encouraged me everyday). My sleep pattern has gone out of the window!

I have been meaning to tell everyone that if your like me and don't show your feeling and smile through the day yet inside your tearing apart and breaking then I think you should try this. I keep a book where I write how I feel and take the anger out on the paper! surprisingly thats when my creative side pops up lol and here on my blog click the "Dear Gastroparesis" tab to check out some examples. http://smilingwithgastroparesis.blogspot.co.uk/p/dear-gastroparesis.html

I hope this helps.

Hafsa xxx :)
"A Smile Cure Anything"

Thursday 17 January 2013

Happy New Year!

Happy New Year to everyone!

(A bit late lol)

I hope and pray that everyone has a  prosperous new year full of love, joy and happiness.

2012 has been full of challenges for me, with its ups and downs but its has taught me life long lessons. I have been admitted in a couple of times in 2012 the hospital feels like a second home. From tube splitting to not tolerating any feeds and medicines being on iv fluids only then having TPN and a new tube placed in. But I'm happy to say that I faced all the challenges and that I'm here today with just about enough energy to type this up. lol

I finished my 6 Alevel exams. but I have not been feeling well at all. Gastroparesis and the Meds have been really tough on me. I'm alway exhausted and tiered, I end up sleeping for more than 16 hours a day and yet I STILL FEEL TIERED! I was really worried about the exams. I vomited more than 15 times in the exam but i still persisted in carrying on and I'm happy to say I FINISHED THEM.

Now I will be focusing on my Extended Project about Gastroparesis :) I will carrying out indepth research.

As always,
"A Smile Cures Anything"

Hafsa xxx